Lecture bioinformatic databases - Thursday - Data management and protection
6 important questions on Lecture bioinformatic databases - Thursday - Data management and protection
Which 4 steps do you need to take into account to reach privacy in an experiment?
2. Do not collect if not necessary
3. If necessary, take measures -> replace by less identifying information or separate data (pseudonymize)
4. Protect
What is included in an informed consent?
- Opportunity to ask questions
- Enough time to think about participation
- Able to make informed choice
- Opportunity to withdraw from study at any time
What is identifying data?
--> identifying by a single variable or combination of variables in one dataset
--> identifying by a combination of sources, with proportionate time and effort (hospital numbers etc.)
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What is the opposite of identifying data?
How can you store your data safely?
- protected: fire wall, safe network, encrypt mobile devices
- back-up and recovery; copies
- back-up person
- access minimization: only access when needed
Where do you best store your data?
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